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Amyloid
- The official journal of the International Society of
Amyloidosis |
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Amyloidosis
Support Network - The Network's primary function is to "link
those affected by amyloidosis to further support resources" and to
educate the public and professionals so that the disease can be
recognized earlier and appropriately treated. |
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Amyloid
Treatment and Research Center - Boston University School of
Medicine |
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Amyloid
Research Group - Indiana University School of Medicine |
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Amyloidosis
Support Groups - Here you will find everything you need to know
about what is happening in the world of support and awareness for
Amyloidosis patients, care givers and those who have lost some one to
this insidious disease. |
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ILTS
- International Liver Transplantation Society |
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ELTR
- European Liver Transplant Registry |
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FAMY
- A Swedish organization for patients with Familial Amyloidosis |
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The
NHS National Amyloidosis Centre - The NHS National
Amyloidosis Centre is the only centre in the UK specialising in
amyloidosis and is part of the University College London Centre for
Amyloidosis and Acute Phase Proteins, one of the world's leading centres
for amyloid research. The Centre has “state of the art” clinical and
research facilities, and a team of highly qualified clinical, research
and support staff |
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Groningen
Unit for Amyloidosis Research & Development (GUARD) –
Dutch website with clinical information about Amyloid and systemic
Amyloidosis for doctors and patients |
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German
Society of Amyloid Diseases |
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The Transthyretin
Amyloidosis Outcomes Survey (THAOS). THAOS is a global,
observational database of clinical information on patients with TTR
amyloidosis (ATTR). The principal aims of THAOS are to enhance the
understanding of the variability, progression, and natural history of TTR
amyloidosis by studying a large and heterogeneous patient population. |
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